Family members of Veterans with mental health problems: Seeking, finding, and accessing informal and formal supports during the military-to-civilian transition
LAY SUMMARY
LAY SUMMARY
Abstract
Résumé
INTRODUCTION
METHODS
Recruitment and eligibility
Procedure
Data analysis
RESULTS
Sample description
Informal support systems accessed by family members and perceived barriers
Informal supports
Sample | n* | |||||||
---|---|---|---|---|---|---|---|---|
Female spouse/common law | 29 | |||||||
Male spouse | 1 | |||||||
Parent(s) | 3 | |||||||
Adult child | 2 | |||||||
Sibling | 1 | |||||||
Total | 36† | |||||||
Age, y | ||||||||
Range | 20–63 | |||||||
Mean | 42.6 | |||||||
Length of relationship with Veteran, y | ||||||||
Range | 3–42 | |||||||
Mean | 21.1 | |||||||
Veteran | ||||||||
Age, y | ||||||||
Range | 32–80 | |||||||
Mean | 45.5 | |||||||
Years of service | ||||||||
Range | 10–35 | |||||||
Mean | 21.6 | |||||||
Service branch | ||||||||
Navy | 3 | |||||||
Army | 11 | |||||||
Air Force | 1 | |||||||
Combined service branch | 5 | |||||||
Family did not disclose | 16 | |||||||
No. of times deployed, range, mo | 2–11 | |||||||
Deployment service length, range, mo | 3–13 | |||||||
Reason for release | ||||||||
Mental or physical problems | 23 | |||||||
Voluntary | 2 | |||||||
Mandatory (age >60 y) | 2 | |||||||
Release date (2013 or later) | 35 | |||||||
Release date (2009) | 1 |
I am in many groups. But not in person, because even in [city], there is not that. You have to go to [city], go to [city]. On Facebook we can meet up pretty well. I speak with another Veteran wife. I do not know her personally, we just speak on the Internet.
Barriers to informal support: Stigma and burden
In addition to the lack of emotional support, many spouses reported that the absence of logistical, day-to-day supports from family and friends compounded the stresses related to child care. Many spouses disclosed that leaving the Veteran at home with their children could be problematic because challenges in parenting often exceeded the Veteran’s capacity to cope on their own.I don’t have any support. Like, last night I talked to my dad and said, “Can you call me?” And he’s like, “Yeah, well, yes I can.” He said, “I will tonight.” I said, “I just need someone to talk to about what’s going on.” He didn’t call. He didn’t text. Um, we both don’t have friends, because we pushed everybody away. Because it’s a burden on other people.
Barriers to informal support: Confidentiality and privacy
Formal supports accessed by family members and perceived barriers
Formal supports
I tried the OSISS support group, and then I went. And I didn’t like it, because a lot of the women that were there were married or with the Veterans before they released and before diagnosis, so they knew [sic] a different aspect to what it was like.
Barriers to formal social support: Navigating the military-to-civilian transition administrative process
In several cases, as a result of conflict between the VAC case manager and the Veteran, the family member had to formally act as a communication liaison: “VAC is now to contact me, because every time VAC contacted him, it, like, it just sets him off for, like, two days.” Family members identified significant administrative barriers embedded within the processes of existing formal support systems, even after eligibility for services was confirmed. The challenges of dealing with the paperwork were also noted by the parent of a Veteran who participated in one of the English-language focus groups:They don’t even acknowledge that her depression has to do, is related to her service. They, they, they won’t even go so far as to recognize that her service exacerbated her depression and made it worse. And it did … just this downhill slide that no one will recognize. So you leave me to deal with the aftermath. And you leave me to try to be the glue that holds us together.
This perceived adversarial relationships between Veterans and VAC, along with concern about the power imbalance, left some feeling:If you have a Member, um, who has, you know, PTSD and OSI, I mean, filling out a little form is enough, but when you’ve got pages and pages of forms and then you send them to them, and they lose them, and then you got to start all over again, um.
vulnerable, totally and permanently incapacitated, and you have somebody with all the power who can control what you will and will not receive … there’s no healing involved, right, because there’s something else that will spring up that you’ll have to fight.
Barriers to formal social support: Lack of awareness and increased isolation
quite alone. Nobody to reach out to, to the families, and that’s just a big, big lack that is, you know, that I was dealing with, and nobody helped me in between the time [the CAF diagnosed him] and when he left.
My frustration was just the fact that nobody was telling me anything. Like, here I am with him 24/7 and I’ve had, like, no contact with anybody saying, “This is what he should be trying to do,” and “If this happens you should do this.”
DISCUSSION
Limitations
Implications
Conclusion
REFERENCES
REGISTRY AND REGISTRATION NO. OF THE STUDY/TRIAL
ANIMAL STUDIES
PEER REVIEW
APPENDIX: INTERVIEW GUIDE
Introduction
Interview question | Potential probes |
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General Information | |
1. Would you like to select a pseudonym we will use for the interview, or would you like us to assign one? 2. What is your age? And the Veteran’s age? 3. What is your current relationship with the Veteran? 4. Are there any children living in the home? 5. When did the Veteran leave the military”? 6. What has the Veteran been doing since release? | How long have you lived with the Veteran? How strongly would you say you and the Veteran are/were engaged with one another on a daily basis? Probe for examples, e.g., meals, socially, physical and mental care. From this relationship? Previous relationships? How many? What were their ages when the Veteran released? How about ages during any deployments? In the last 5 years, how many months of the year would the family unit be living together? How long did your family member serve in the military? What was the nature of the Veteran’s work in the military? Trade? Officer? Deployment? If deployed, how many times? Can you tell us about the nature of the deployment(s)? What prompted the decision to release/leave the military? Plan to retire? Health issues? Family needs? Did you go through the transition process with the Veteran? Work? Volunteering? Hobbies? Caregiving for other family members? Fitness? Managing health? |
Objective 1: Identify the impacts of CAF Veterans’ mental health problem(s) (including OSIs), on family members and on the functioning of the family unit during MCT. | |
7. How did the Veteran’s military service impact the household and family life? 8. Tell us about the Veteran’s health. How does the health of the Veteran impact the family life? If his/her health has affected family life, tell us more about this. 9. What has changed since the mental health issues have been identified (including clinical diagnosis)? | What was fulfilling; what did you like? What were the challenges? Highlights/lowlights? Was there a medical release? For what kind of condition? Physical, mental? Has there been a diagnosis of a mental health condition? How and when was the problem identified/first became apparent? Is he/she presently receiving treatment, e.g., therapy/counselling, consultation, medication? Who is providing the mental health support — family physician, psychiatrist, psychologist, occupational therapist? Other? What has been the impact of the treatment? |
Objective 2: Describe the mental health and well-being of family members of CAF Veterans who have mental health problems. | |
10. How, if at all, have the mental health issues in your Veteran family member impacted you? Your family? How would you describe this effect/these effects? 11. How, if at all, have you or other members of your family made adjustments to manage the impact of the Veteran’s mental health? 12. Tell me about the relationship between your family member’s mental health and your/your family’s health/well-being? | Determinants of well-being, e.g., employment effects, financial effects, impacts on health and disability, changes to social integration, impacts on housing, psychological effects. Are you experiencing any impacts? For example, hypervigilance, sleep disturbances, irritability, parenting, intimacy. For example, adjusting your behavior or expectations, using strategies like exercise to help calm or day planners to organize health appointments? Are there are other mental health issues in the family and how those have been impacted by the Veteran’s health? |
Objective 3: Identify, from the family member’s perspective, how family life is impacting and being impacted by the Veterans’ well-being during MCT (there will be no contact with the Veterans themselves). | |
13. Your Veteran/family member has been managing both mental health issues and the transition into civilian life. Tell us more about how that’s been. 14. How have the mental health issues of the Veteran affected the transition to civilian life? 15. Has your daily routine changed during or since your Veteran has transitioned to civilian life? In what way? Other changes? 16. What impact do you feel family life has had on your Veteran’s mental health during the military to civilian transition? | For example, child care or other daily responsibilities. Other determinants of well-being — employment effects, financial effects, impacts on health and disability, changes to social integration, impacts on housing, psychological effects Has it affected the relationships with children? With parents? Siblings? With family? With friends? Have your social relationships changed? Do you still have the same routine with friends and family? How has this affected your relationship with the Veteran? How has it been a positive factor? A negative factor? |
Objective 4: Identify interventions and supports accessed during the MCT and their success in addressing the needs of the family. | |
17. What do you do to take care of yourself and your family through the transition process? 18. How do these things help you manage the transition experience? Your family member’s mental health? | Physical, social, spiritual supports. Formal/informal? Hobbies? Career? |
19. Where do you find the greatest support during this transition period? 20. What does this support mean to you? 21. As your family has made the transition to civilian life, what have you learned about your support system(s)? 22. Have you or would you seek support targeted to Veterans and/or their families? families? | Family, friends, community, church/mosque/synagogue, military/Veteran family services What are the positive aspects of this support? What are the negative (if any) aspects of this support? Are you familiar with the OSI clinics, or other programs offered through military/Veteran family services? If yes, what was your experience of those services? What were the key ingredients that were most helpful for you? Why or why not? |
Objective 5: Based on the findings, identify interventions and supports that could enhance the overall health and well-being of families during MCT and into the future. | |
23. Given your experience, what services and programs would help you and other families supporting members/Veterans with a mental health issue through the transition from military to civilian life? 24. Is there anything you would change to existing programs to help make them better meet your needs now, or in the future? 25. Is there anything else you think would be useful for us to know about mental health and transition that we haven’t already covered? | How did you learn about these? Enhanced communication channels, greater awareness of supports and services, changes to financial benefits, use of technology to promote access How would you like to get information about supports? |
Note: CAF = Canadian Armed Forces; OSI = operational stress injury; MCT = military-to-civilian transition.
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Journal of Military, Veteran and Family Health 2021 7:1, 21-34